The Multiple Sclerosis Trust
The Multiple Sclerosis Trust
  • Видео 606
  • Просмотров 2 016 058
What is nocturia?
Getting up in the night multiple times to go to the toilet? This is known as nocturia. In this video, Angie Rantell, consultant nurse in urogynaecology, explains what is (and isn't) classed as nocturia.
Просмотров: 104

Видео

Demystifying MS diets pt 1: the Wahls Protocol and Overcoming MS
Просмотров 30715 часов назад
Have you thought about making changes to your diet to help manage your MS? Maybe you’ve experimented with a few fad diets, but never quite found what works. Well, we know the feeling. The world of nutrition can be tricky - you’re not sure if you should be keto, vegan, paleo, carnivore or just straight up confuddled. Throw MS into the mix and all of a sudden, things can get even more confusing. ...
Living with MS: Caz's story
Просмотров 231День назад
Caz tells us about her diagnosis, relapses, family life, aids, adaptations and more. Hear about her life with her daughter and her message for the MS community. MS Trust website: mstrust.org.uk/ MS Trust helpline: mstrust.org.uk/what-we-do/about-us/ms-helpline-and-information Donate to the MS Trust: donate.mstrust.org.uk/ #MS #MultipleSclerosis #MSTrust #MSCommunity #MSStory
Tips for your first neurologist appointment
Просмотров 21114 дней назад
Consultant neurologist, Dr Agne Straukiene, gives her suggestions to help you prepare for your first neurologist appointment, looking into unexplained symptoms that you are experiencing. Neurologists need to cover a lot of ground during a first appointment and time is limited, so she provides some useful insights. For more about what to do when you are waiting for your first neurologist appoint...
Young carers in MS - Oritsé Williams' story
Просмотров 29921 день назад
JLS founding member and critically acclaimed solo artist Oritsé Williams has been in the limelight since 2008. But long before the dazzling, bright lights of fame, Oritsé began his journey as a young carer for his mum, who was diagnosed with MS when he was 12 years old. Find out about the challenges that he and his siblings faced, his mother’s MS journey and why he’s passionate about supporting...
We jargon bust some typical MS spasticity and spasms terms
Просмотров 650Месяц назад
Muscle spasms and spasticity are common symptoms of Multiple Sclerosis. They can have a big impact on quality of life and daily activities for many people with MS. In this video Jon Marsden, Professor of Rehabilitation, University of Plymouth; Dr Louise Jarrett, MS Trust Lead Nurse Specialist & NHSp MS Clinical Nurse, Royal Devon University Hospitals Trust & Rhian O’Halloran, Clinical Specialis...
Limbo land - what you can do while you wait for an MS diagnosis
Просмотров 356Месяц назад
Waiting for a potential multiple sclerosis diagnosis can be daunting. In this episode, we explore the "limbo land" time during your first appointments and a possible MS diagnosis. Neurologist, Dr Emma Tallantyre, joins us to talk about the importance of reaching out to your healthcare professionals, managing stress and more! We discuss the roles of neurologists and the tests you might go throug...
Looking after pelvic health
Просмотров 1812 месяца назад
We catch up with Angie Rantell, Consultant Nurse, at the MS Trust conference about what her sessions on bladder dysfunction , demystifying the menopause and psychological and physiological sexual dysfunction was about. For more information on some of the subjects covered please visit our website Menopause: mstrust.org.uk/a-z/menopause Sexual problems for women in MS: mstrust.org.uk/a-z/sexual-p...
Manging intimate and sexual relationships in MS
Просмотров 2322 месяца назад
Physical and emotional intimacy is often crucial to the long-term survival of couple relationships. But levels of desire change as relationships develop and sex in a committed relationship can ebb and flow. This is especially true for relationships where one or both partners have multiple sclerosis. MS and the symptoms of the condition can affect how you feel about yourself, how you relate to y...
Preparing for digital consultations
Просмотров 672 месяца назад
Preparing for digital consultations
#MS 3 tips for finding a public toilet
Просмотров 2242 месяца назад
#MS 3 tips for finding a public toilet
We jargon bust some typical MS bladder terms
Просмотров 1262 месяца назад
We jargon bust some typical MS bladder terms
Top tips for MS bowel health to keep your bowel as healthy as possible
Просмотров 2732 месяца назад
Top tips for MS bowel health to keep your bowel as healthy as possible
Top tips for MS bladder health for the best chance of maintaining good bladder function
Просмотров 3112 месяца назад
Top tips for MS bladder health for the best chance of maintaining good bladder function
MS Unfiltered: tackling taboo symptoms
Просмотров 4442 месяца назад
MS Unfiltered: tackling taboo symptoms
Social determinants of health in MS
Просмотров 1352 месяца назад
Social determinants of health in MS
Top tips for exercising with MS
Просмотров 2112 месяца назад
Top tips for exercising with MS
Anxiety, depression and distress in MS
Просмотров 1622 месяца назад
Anxiety, depression and distress in MS
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
Просмотров 3712 месяца назад
How periods, pregnancy, breastfeeding and the menopause can affect multiple sclerosis in women
How can I manage my MS bowel problems?
Просмотров 6673 месяца назад
How can I manage my MS bowel problems?
MS: Functional exercises to help you with moving around in bed
Просмотров 5083 месяца назад
MS: Functional exercises to help you with moving around in bed
MS: Functional exercises to help you get up and down the stairs
Просмотров 7443 месяца назад
MS: Functional exercises to help you get up and down the stairs
MS: functional exercises to help you get on and off the floor
Просмотров 7403 месяца назад
MS: functional exercises to help you get on and off the floor
MS: functional exercises to help you when getting in and out of the car
Просмотров 4473 месяца назад
MS: functional exercises to help you when getting in and out of the car
MS: functional exercises to support grocery shopping
Просмотров 3093 месяца назад
MS: functional exercises to support grocery shopping
How can I treat bladder problems in MS?
Просмотров 4604 месяца назад
How can I treat bladder problems in MS?
What can you do about bladder problems in MS?
Просмотров 5904 месяца назад
What can you do about bladder problems in MS?
My Tecfidera diary (MS DMD)
Просмотров 1 тыс.5 месяцев назад
My Tecfidera diary (MS DMD)
Mind Matters: Looking after your mental health with MS
Просмотров 3275 месяцев назад
Mind Matters: Looking after your mental health with MS
Can mindfulness really help with my MS?
Просмотров 4245 месяцев назад
Can mindfulness really help with my MS?

Комментарии

  • @sjmakesit9968
    @sjmakesit9968 2 дня назад

    Pls I’m very depressed

  • @MrKrook10232
    @MrKrook10232 2 дня назад

    No time line

  • @sjmakesit9968
    @sjmakesit9968 2 дня назад

    My appointment is next week pls help me pls I need help I’m very depressed

    • @mstrust
      @mstrust 2 дня назад

      Hi, thanks so much for getting in contact. We can help by answering any questions that you might have about the process. Is there anything that you'd like to ask us?

  • @mycomage
    @mycomage 4 дня назад

    "healthy fats" = tallow

  • @mycomage
    @mycomage 4 дня назад

    The myelin sheath is made up of saturated fat and cholesterol

  • @mycomage
    @mycomage 4 дня назад

    I've had Ms since 2011. I went plant-based whole food for 8-1/2 years and lesions on the brain only grew and became more active. I went high fat carnivore in 2021 and the lesions stopped reproducing and started shrinking and disappearing

  • @josephinecronin1195
    @josephinecronin1195 5 дней назад

    The thought of military precision in my diet is another exhaustion factor that I don’t need. A couple of suggestions here and there is the most I can cope with

  • @Believe-you-me-
    @Believe-you-me- 6 дней назад

    They don’t work. Never have, never will. Just look after yourself and eat healthy. You will feel better. But miracle diets to cure ms are BS.

    • @grifter_alert
      @grifter_alert 3 дня назад

      This is why we are riddled with too many scams from banking to online scams to name a few, RUclips needs to revisit there guidelines on bogus claims and band them. Instead if you critique them and their narratives, they are very fast to lodge a complaint against you to silence it 🤐so the money machine can continue….

  • @asmaamortada5024
    @asmaamortada5024 6 дней назад

    We need our legs back again

  • @JuicyPeaches504
    @JuicyPeaches504 8 дней назад

    I'm going thru the same. But doctor says it's not MS and I KNOW it is. Even have legions on my brain. And so much more symptoms 😭

    • @mstrust
      @mstrust 6 дней назад

      Thank you for sharing. I hope that you find out what's happening soon. Sending you best wishes from the MS Trust.

  • @savagefrombirth1304
    @savagefrombirth1304 9 дней назад

    i had a leak with mine but they didnt tell me it was a bad thing but i wasnt allowed to do anything but lie down. i had a bad experience as the newbies in emergency had trouble and had to do it more than once . my brother in laws brother who was a doctor said that in emergency they have doctors learning to be a doctor and he said i shouldnt have had it . twas a horrible experience as they commented on my body and blamed that for them not to do it right. i felt like an experiment

    • @mstrust
      @mstrust 9 дней назад

      So sorry to hear about that experience. That must have been really distressing. Sending you best wishes from the MS Trust.

  • @francollins4036
    @francollins4036 12 дней назад

    Funny guy.. you funny guy!!!

  • @jessifay8579
    @jessifay8579 13 дней назад

    Can u pass me more information about injector? Where i can buy. I need only injector nothing else . Thank you!

    • @mstrust
      @mstrust 12 дней назад

      If your injector is broken, it is best to contact your MS nurse. You can find contact details on the map at (mstrust.org.uk/information-support/support-services/ms-services-near-me). Failing that, the drug is manufactured by Bayer (pulse.ly/vhtgv8kf4e). As the pens are designed for use with a specific medication, it is unlikely that you could get an injector without a prescription for Betaferon. MS Trust Enquiry Service

  • @nyrhockeychick4life655
    @nyrhockeychick4life655 14 дней назад

    I felt this

    • @mstrust
      @mstrust 13 дней назад

      Sending you best wishes from the MS Trust. 💙

  • @TK.000
    @TK.000 15 дней назад

    I hate MS. My mom has it. I wish you well with your disease. Hopefully yours is the kind that goes into remission for decades like my moms did. Stress brought her out of it. So take care of yourself the best you can. ❣️

    • @mstrust
      @mstrust 13 дней назад

      Thank you for sharing. Sending you and your mother best wishes from the MS Trust

  • @unomas7996
    @unomas7996 15 дней назад

    Empecé a sentir eso hace 2 meses, y baje mucho peso. Sera eso? Yo pienso qué es otra cosa pero no le encuentro sentido. Pero siento como si me estrujaran las tripas, a veces se me ven las venas de el torso y sobre mi abdomen todo todo . Sera que es ms abrazo? Tengo ms

  • @ernestreid9296
    @ernestreid9296 17 дней назад

    My Neurologist likes me to bring a loved one with me to meetings. That way they can tell on me. It is easy to forget what is going on with ourselves.

    • @mstrust
      @mstrust 17 дней назад

      That's a really good tip - thank you for sharing.

  • @mickikindley7821
    @mickikindley7821 18 дней назад

    Being encased in cement and walking thru wet sand

    • @mstrust
      @mstrust 18 дней назад

      Thank you for sharing 💙

  • @tonimcdaniel9110
    @tonimcdaniel9110 20 дней назад

    You are a beautiful human being .Inside and out.Never give up and keep doing what you are doing .God Bless.🙏🏾🙏🏾🙏🏾❤️🌹

    • @mstrust
      @mstrust 19 дней назад

      💙💙💙

  • @wardensworld6308
    @wardensworld6308 22 дня назад

    Diagnosed at 31. Im 34 now. Thishit mehard before they caught what was going on for me. Im on ocrevis. I don't have any rrlapses, so i think it is working. Walking, standing, all bad. Optical nueropathy on left eye, so blind there. PT is only helping so much. Very shaky. I just want to walk again. Doing my best every day. Going to continue to do my best in the future. Thanks for this.

  • @HeatherSearls
    @HeatherSearls 23 дня назад

    I am just here to vent about an LP. Yes and LP alone was ruff the healing process after was Hell… the worst headache I have ever had in my life…. If you get one just don’t move for 2 weeks after or else.

    • @mstrust
      @mstrust 23 дня назад

      Thank you for sharing your very honest experiences of having a lumbar puncture. Sending you best wishes from the MS Trust.

  • @carotha64
    @carotha64 23 дня назад

    I have all the symptoms of MS (double vision too, but not optic neuritis). I’m struggling to walk, have severe muscle pain, mainly in my legs, weird numbness/loss of sensation that has been spreading for years now, nausea, dizzyness, gastrointestinal problems, problems with sexual dysfunction, problems with bladder and bowels, electric shock when I turn my head (not every time), unbearable itching whenever I get out of water or brush/bang against something… You name the MS symptom, I probably have it. My brother has MS, and he believes I do too. I do have lesions on my brain consistent with MS, but ALL my tests have been normal. We even did a lumbar puncture. Normal. So I have no diagnosis, and my doctors feel there isn’t anything else to do. But I was an athlete. I was a graceful dancer and martial artist. And suddenly, I lost it all. I can’t walk very far without cramping up, and if I push it, my legs will buckle and give out. I struggle even to push an empty grocery cart. It’s like my body doesn’t remember how to work. I’m really scared it will just keep getting worse. Meanwhile, no one believes me but my brother, and there is no treatment for me. I would do better with keg braces, but I can’t get my doctors to take me seriously. One said, “Let’s try Lyrica for merve pain, and maybe if you have less pain, you won’t have to walk so slowly.” I don’t walk slowly because it hurts! I walk slowly because my legs don’t work! I don’t know how else to say it! I’m scared and alone and feel like I’m watching life from the outside now.

    • @carotha64
      @carotha64 23 дня назад

      Sorry about the typos. I’m also having trouble typing the right letters.

    • @mstrust
      @mstrust 23 дня назад

      Thank you for sharing what you're going through. That must be such a difficult situation to be in. If you're UK based, we have a free, confidential helpline. They offer information and resources that could help. You can contact them via phone or email. pulse.ly/sy3isx9tri Sending you best wishes from the MS Trust. 💙

  • @icepix1982
    @icepix1982 23 дня назад

    Excellent interview

    • @mstrust
      @mstrust 23 дня назад

      Thank you for watching 💙

  • @lizz_3117
    @lizz_3117 26 дней назад

    The thing is about Oritsè is, he gives everyone 100%, whether that's being a kind and caring person or musically giving, there's always everything that he puts into something. I'm so proud of him and his achievements, he makes me incredibly amazed at everything he's ever done. If only people could be like him more, only as the world is already a scary place at times, we need more compassion. Never stop being you, Oritsè!!! We love you and your beautiful mum, she's so lucky to have a son in you❤️

    • @mstrust
      @mstrust 26 дней назад

      Thank you for watching 💙

  • @shylynnh2971
    @shylynnh2971 28 дней назад

    The 5th time I got it done, it Def hit a nerve because my entire hip and leg went numb

    • @mstrust
      @mstrust 27 дней назад

      Thank you for sharing 💙

  • @shylynnh2971
    @shylynnh2971 28 дней назад

    I had this done 5x and each time. Each time, I was in major pain each time..

    • @mstrust
      @mstrust 27 дней назад

      Thank you for sharing 💙

  • @brandall5371
    @brandall5371 Месяц назад

    Most doctors act bothered or think the patient is a hypochondriac. I'm almost 50 and have brought up so many symptoms that I eventually stopped telling them. Recently my eye doctor told me I had something that she could see a my optic nerve that is linked to MS. That was only last week. I was there w a cane and an injury that I had no idea how it happened. So I'm glad she said something. I'm off of work w this mystery thing right now. I kind of dismissed my eye doctor at the time, but now reading up on it, a lot makes sense. If I get this as a diagnosis I won't be surprised, I might even be relieved. I've been tired for years. Wrote off my clumsiness as an ADHD symptom. I've had tingles and LOTS of twitching to the point of thinking I may later get Parkinson's. I'm adopted so I do not have family history. The doctor speaking- it looks like all of you have autoimmune issues, that's the link. Thank you for sharing your story and thank you all for the great information on this channel❤

    • @mstrust
      @mstrust 27 дней назад

      Thank you for sharing your experiences and your journey. 💙

    • @savagefrombirth1304
      @savagefrombirth1304 9 дней назад

      i understand your frustration i have had doctors say when i visit one thing to deal with at a time as i had too many symptoms they didnt want to know about

  • @FullTimePatient37
    @FullTimePatient37 Месяц назад

    Nothing helps i have ab air mattress abd heat pads nothing... scissoring is very painful

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing. Sending you best wishes from the MS Trust. 💙

  • @PewPewGuy85
    @PewPewGuy85 Месяц назад

    My MS affects my thinking skills and my speech in the past 6 months. First diagnosed in 2019 when I had an MRI for hitting my head at work. My original onset was 2017 with a mini stroke. I used to work on cars and be very hands on and ever since the last flare about 4 months ago it’s so much worse. If only they didn’t make the medicine to control so hard to get

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing your experiences. Sending you best wishes from the MS Trust. 💙

  • @dkasper3267
    @dkasper3267 Месяц назад

    Intermittent fasting, vit D, B complex, no gluten, no processed food, no dairy, stretch, and move your body can help symptoms.

  • @mepanousispanousis6784
    @mepanousispanousis6784 Месяц назад

    Suddenly colors , especially red , appeared too Vivid , in a bad way . Red was too red . Examination of the eye didnt show anything , after two weeks colors went back to normal. Doctor said lets fix your classes first as they are off , and then lest wait to see if the eyes are going to be better . I am sure that this is a form of optic neuritis .

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing. Sending you best wishes from the MS Trust. 💙

  • @Jana_14320
    @Jana_14320 Месяц назад

    Newly diagnosed and found your video! Thank you for posting this and showing the process. I needed a real life example of what actually happens. I haven’t started infusions yet but had my first phone call today discussing the details with my care team. SOOOOO much information was provided and after the call, I went on their website. They had a few videos, and I only could stomach two of them. They were exactly like all the generic pharmaceutical commercials that we see so much here in the States. I couldn't stomach the frolicking and exaggerated excitement to this MS infusion medication. (Honestly hate how much this is done with our medications in the states. It feels so icky). I appreciate you walking through the actual steps and showing what happens to you on infusion day. I am quite scared and anxious to start and this helped so much. Best wishes on your journey from your sister in MS from across the pond. Y

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing your experiences. Sending you best wishes from the UK.

  • @markoliberty7581
    @markoliberty7581 Месяц назад

    I hated this vep test, I hardly could take it. It was very discomfort able watching these changing patterns

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing. Sending you best wishes from the MS Trust. 💙

  • @khalilsoliman787
    @khalilsoliman787 Месяц назад

    It's my day today

  • @bonnieplastino4923
    @bonnieplastino4923 Месяц назад

    ON MAY 19th between 5pm and 6 pm. 2 MRI woman age mid twentys. They Are the mist abusive to patients that screamed and cried . They could e they careless that spine injuries or arthritis spine problems. They dont think to the damage. THESE PEOPLE THAT SAY OUR CARE PERSON CANT HELP IS A LIE. THEY SHUT OUT THAT PERSON SHUT DOOR SO AT THAT POINT THEN NO ONE SEES HOW BAD THEY CAUSE HARM . SOMEONE FIRE NASTY PEOPLE THAT, DONT BELONG AROUND ENDURED PEOPLE.

  • @FlaGrown1955
    @FlaGrown1955 Месяц назад

    Wonderful information.

    • @mstrust
      @mstrust Месяц назад

      Thank you for watching 💙

  • @philsharrock239
    @philsharrock239 Месяц назад

    Thanks Laura, great instructions

    • @mstrust
      @mstrust Месяц назад

      Thank you for watching 💙

  • @donnageorge5995
    @donnageorge5995 Месяц назад

    This year walking has been more difficult for me. I don't have the stamina and i constantly have to pause. The bottom of my feet are numb however there is no pain. I have had 3 back surgeries, my entire body is in pain. I don't know if it is due to my spine or something else.

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing your experiences. Sending you best wishes from the MS Trust 💙

  • @rickyred001
    @rickyred001 Месяц назад

    Comedy genius

    • @mstrust
      @mstrust Месяц назад

      💙💙💙

  • @RaceDayAnderson
    @RaceDayAnderson Месяц назад

    Can anyone relate to these symptoms? The recent ones don't seem common ? First symptoms:I had a cluster of symptoms over 5 weeks (2 years ago) these symptoms only happened during those weeks: First was a sensation of suction around my eyeball. (I had my eyes checked and both were very heathy and 20/20 vision), Deep pain in leg muscles (like a fist), lost bladder control, forgot words, numbness on right side face and 1/2 tongue very numb and sometimes electricity in arms or legs. Following that I developed low grade fever that has persisted for 2 years. Randomly I'll have very numb patches that last for a day or a few days. Then 3 months after that initial "attack" my right eye developed a Scotoma (grey circle in lower vision), this persisted for another 6months with sometimes pain. Eye tests showed retina is good and don't see inflammation of optic verve. 3 weeks ago that Scotoma changed into a central vision blur, kind of greyish smudge. At the same day my left eye developed grey smudges and I had a sparkling headache on the left side of my face. The last random symptom are canker sores only on my tonsils. They reappear every 2-2.5 weeks, one on each tonsil. (Tested for other factors like STDs and those are all negative.) Blood work is "fine" Iron is within limits but working to raise it. Thanks for reading this story!

  • @jagriteerai9472
    @jagriteerai9472 Месяц назад

    How we consult to u?

    • @mstrust
      @mstrust Месяц назад

      If you have any questions, please do get in contact with us at ask@mstrust.org.uk

  • @jagriteerai9472
    @jagriteerai9472 Месяц назад

    My brother in law work in airforce,he is also suffering from MS, after plasma therapy he suffers UTI often.. pls help me out

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing. If you have any questions about UTIs, please do get in contact with us at ask@mstrust.org.uk Sending you and your brother best wishes.

  • @lauraluffman6177
    @lauraluffman6177 Месяц назад

    I got these altered sensations too found out later alot of its due from MS I was so scared I thought I was dying

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing. That must have been such a scary experience. Sending you best wishes from the MS Trust.

  • @alexkay5584
    @alexkay5584 Месяц назад

    You can continue a normal life, you have to accept MS yourself before expecting anyone else too. From experience people who don't know anyone close to them with MS will not understand and possibly never will. All I would say is be strong and get used to needles, you will get used to MRI Scans, blood tests and infusions and it's nothing to worry about. My first signs were loss of feeling in my right side and urgency to pee. I have my Ocrevus infusion next week and bloods taken this week. I take Gabapentin every night among other medications. MS affects my bladder which means I catheterize every day otherwise I wet the bed at night. I have a wife and family who understand but don't give me an easy ride and why should they as it keeps me on my feet. A lumbar puncture is the method of detecting MS so I can only advise people who have been for a number of MRI's with no result, get referred for a lumbar puncture, not a pleasant experience although I had a junior doctor practice on myself and actually had 3 lumbar punctures in one sitting. Everyone has their own MS story. Stay strong MS Warriors!!!!!!

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing 💙

  • @tlraffaele
    @tlraffaele Месяц назад

    Grains are extremely inflammatory. Carnivore is the best anti-inflammatory diet you can be on.

    • @kyleO1
      @kyleO1 26 дней назад

      Don't listen to this if you want to actually get better 😂 do the opposite and eat only meat

  • @lauraluffman6177
    @lauraluffman6177 Месяц назад

    Thank you guys for the advice I was just diagnosed in March of this year and it's definitely been an uphill battle

    • @mstrust
      @mstrust Месяц назад

      Thank you for sharing your situation. Please do get in contact with us if you need any resources or information. We know how difficult going through an MS diagnosis can be. Sending you best wishes from the MS Trust. 💙

  • @sirusbalakisiyev
    @sirusbalakisiyev Месяц назад

    Mən sağlam adam özüm yeriyə yeriyə girdim amma indi heç yeriyə bilmirəm + əllərimdə tutmur. Yəni hər həkimin dediyini etməyin bu həkim kimi

  • @kaylahall1219
    @kaylahall1219 Месяц назад

    If it makes my life better, then everyone else can suck it!

  • @balrajaluri3868
    @balrajaluri3868 Месяц назад

    MS Hug

  • @daltsav
    @daltsav 2 месяца назад

    For acouple of years now i have this problem when i sit up or flex my rib muscles in any way it immediately goes into a painful spasm that i have to arch my torso back wards and squeeze really hard to get it to dissipate. The muscles contraction can be visible on either side of my solar plex. It only happens when i flex. Is this a description of the MS hug? Ive recently developed horrible virtigo, ill have it for a week or so and then it goes away only to come back a month or so later. I have pain that comes and goes too but ive not had an MS diagnosis.

    • @mstrust
      @mstrust Месяц назад

      Hi, Thanks for sharing what's been going on with you. It's possible it could be the MS hug. The sensation of the MS hug can be caused by the muscles in between your ribs spasming. In MS, this is caused by damage to the nerves which means messages from your brain to other parts of the body get a bit confused. Some people do notice certain things that trigger the MS hug, such as fatigue, stress and temperature changes. It's possible that posture/certain positions may be a trigger for you. It's always important to get any chest pain checked out by a doctor. Do also speak to your doctor about the symptoms you've been experiencing, so they can start some investigations and work out the cause. We have a blog on the MS hug which you might find useful: mstrust.org.uk/news/what-is-ms-hug We have another page on it here too: mstrust.org.uk/a-z/ms-hug These pages contain some tips on things you can do to try and ease the MS hug and make yourself more comfortable. If you'd like to hear other people's experiences of the MS hug, you can join our Facebook group and post a question on there: facebook.com/groups/multiplesclerosistrust/ I hope you find this info useful. Best wishes, Gemma, MS Trust Helpline ask@mstrust.org.uk

    • @daltsav
      @daltsav Месяц назад

      @@mstrust 🤗 Thank you for the info.